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UMC Repository: Recent submissions

  • Patient-reported daily functioning after SARS-CoV-2 vaccinations in autoimmune neuromuscular diseases 
    van Dam, Koos P.J.; Wieske, Luuk; Stalman, Eileen W.; Kummer, Laura Y.L.; van der Kooi, Anneke J.; Raaphorst, Joost; van de Beek, Diederik; Verschuuren, Jan J.G.M.; Ruiter, Annabel M.; Brusse, Esther; van Doorn, Pieter A.; Baars, Adája E.; van der Pol, W. Ludo; Goedee, H. Stephan; ten Brinke, Anja; van Ham, S. Marieke; Rispens, Theo; Kuijpers, Taco W.; Eftimov, Filip; the T2B! Immunity against SARS-CoV-2 study group (Wiley-Blackwell, 2024-12)
    Background and purpose: There are concerns for safety regarding SARS-CoV-2 vaccines for patients with autoimmune neuromuscular disease. We compared daily functioning using disease-specific patient-reported outcome measures ...
  • Improvement Across Dimensions of Disease with Lebrikizumab Use in Atopic Dermatitis: Two Phase 3, Randomized, Double-Blind, Placebo-Controlled Monotherapy Trials (ADvocate1 and ADvocate2) 
    Simpson, Eric; Fernández-Peñas, Pablo; de Bruin-Weller, Marjolein; Lio, Peter A.; Chu, Chia Yu; Ezzedine, Khaled; Agell, Helena; Casillas, Marta; Ding, Yuxin; Yang, Fan Emily; Pierce, Evangeline; Bieber, Thomas (Springer, 2025-01)
    Introduction: Atopic dermatitis is a complex, chronic, inflammatory skin disease that requires long-term control of symptoms like itch and sleep loss and improvement in quality of life, in addition to reduction of clinical ...
  • Combined bictegravir, emtricitabine and tenofovir alafenamide for treating people with HIV: a plain language summary of the BICSTaR study up to 1 year 
    Esser, Stefan; Inciarte, Alexy; Levy, Itzchak; Monforte, Antonella D.Arminio; Lambert, John S.; Welzen, Berend van; Teruya, Katsuji; Boffito, Marta; Liu, Chun Eng; Aydın, Ozlem A.; Thorpe, David; Heinzkill, Marion; Marongiu, Andrea; Cassidy, Tali; Haubrich, Richard; D'Amato, Lisa; Robineau, Olivier (Taylor and Francis Ltd., 2024)
    What is this summary about?: This is a summary of an article about an ongoing study called the BICSTaR study. The BICSTaR study includes people with HIV (human immunodeficiency virus) who are taking a medicine called ...
  • Speech and language therapists’ perceptions of contextual factors associated with communicative participation in children with developmental language disorders 
    Singer, Ingrid; Gerrits, Ellen; Gorter, Jan Willem; Luinge, Margreet (SAGE Publications Ltd, 2024-10)
    Children with developmental language disorders (DLDs) may experience barriers to communicative participation. Communicative participation is defined as ‘participation in life situations in which knowledge, information, ...
  • Collective knowledge exchange through regional hubs: Local expertise, global platform 
    Llamas, Camilla Alay; Guinto, Renzo; Addison, Julia; Alam, Nazmul; Amoakoh, Hannah Brown; Artola Arita, Vicente; Kolpa, Noa; Mattijsen, Juliette; Zhang, Ying; Downward, George S.; Browne, Joyce L. (Wiley-Blackwell, 2024-10)
  • ASO Author Reflections: Intraductal Papillary Mucinous Neoplasm-Derived Pancreatic Cancer: A Need to Evaluate for Specific Staging Systems 
    Habib, Joseph R.; Rompen, Ingmar F.; Javed, Ammar A.; Daamen, Lois A. (Springer New York, 2024-12)
  • Integrating Prime Editing and Cellular Reprogramming as Novel Strategies for Genetic Cardiac Disease Modeling and Treatment 
    Yao, Bing; Lei, Zhiyong; Gonçalves, Manuel A.F.V.; Sluijter, Joost P.G. (Springer, 2024-11)
    Purpose of review: This review aims to evaluate the potential of CRISPR-based gene editing tools, particularly prime editors (PE), in treating genetic cardiac diseases. It seeks to answer how these tools can overcome current ...
  • Quantitative metrics commonly derived from diffusion tractography covary with streamline length: a characterization and method of adjustment 
    Carson, Richard G.; Leemans, Alexander (Springer-Verlag, 2024-12)
    Tractography algorithms are used extensively to delineate white matter structures, by operating on the voxel-wise information generated through the application of diffusion tensor imaging (DTI) or other models to diffusion ...
  • LISTENING TO THE VOICE OF THE PATIENT IN RSV RESEARCH 
    Lee, Andrew W.; Thomas, Rachael; Chung, Bowen; Bont, Louis J. (Lippincott Williams & Wilkins, 2024-12)
    Patient and public involvement in research refers to patients or caregivers with disease experience contributing to the design, conduct or dissemination of results from research. Patient and public involvement has given ...
  • Histopathological response to chemotherapy and survival of mucinous type gastric cancer 
    Caspers, Irene A; Slagter, Astrid E; Vissers, Pauline A J; Lopez-Yurda, Martha; Beerepoot, Laurens V; Ruurda, Jelle P; Nieuwenhuijzen, Grard A P; Gisbertz, Suzanne S; Van Berge Henegouwen, Mark I; Hartgrink, Henk H; Goudkade, Danny; Kodach, Liudmila L; Van Sandick, Johanna W; Verheij, Marcel; Verhoeven, Rob H A; Cats, Annemieke; Van Grieken, Nicole C T (Oxford University Press, 2025-02)
    Background: Data on the clinicopathological characteristics of mucinous gastric cancer (muc-GC) are limited. This study compares the clinical outcome and response to chemotherapy between patients with resectable muc-GC, ...
  • N-of-1 trials in epilepsy: A systematic review and lessons paving the way forward 
    Defelippe, Victoria M; Brilstra, Eva H; Otte, Willem M; Cross, Helen J; O'Callaghan, Finbar; De Giorgis, Valentina; Poduri, Annapurna; Lerche, Holger; Sisodiya, Sanjay; Braun, Kees P J; Jansen, Floor E; Perucca, Emilio (Wiley-Blackwell, 2024-11)
    OBJECTIVE: Defined as prospective single-patient crossover studies with repeated paired cycles of active and control intervention, N-of-1 trials have gained attention as an option to obtain high-quality evidence of efficacy, ...
  • Durable left ventricular assist devices following temporary circulatory support on a microaxial flow pump with and without extracorporeal life support 
    Lewin, Daniel; Rojas, Sebastian V.; Billion, Michael; Meyer, Anna L.; Netuka, Ivan; Kooij, Janajade; Pieri, Marina; Loforte, Antonio; Szymanski, Mariusz K.; Moeller, Christian H.; Akhyari, Payam; Jawad, Khalil; Krasivskyi, Ihor; Schmack, Bastian; Färber, Gloria; Medina, Marta; Haneya, Assad; Zimpfer, Daniel; Nersesian, Gaik; Oezkur, Mehmet; Djordjevic, Ilija; Saeed, Diyar; Stein, Julia; Kraaijeveld, Adriaan O.; Gustafsson, Finn; Scandroglio, Mara; Meyns, Bart; Hofmann, Steffen; Belohlavek, Jan; Gummert, Jan F.; Lanmueller, Pia; Bernhardt, Alexander M.; Potapov, Evgenij V. (Elsevier, 2024-10)
    Background: Circulatory support with a catheter-based microaxial flow pump (mAFP) plays a major role in the treatment of severe cardiogenic shock. In most patients who fail to recover while on temporary mechanical circulatory ...
  • Acceptability and potential benefit of a self-compassion intervention for people living with amyotrophic lateral sclerosis: a mixed methods pilot study 
    Sommers-Spijkerman, Marion; Zwarts-Engelbert, Aimée; Kruitwagen-Van Reenen, Esther; Van Eijk, Ruben P.A.; Visser-Meily, Johanna M.A.; Heijmans, Emmy; Austin, Judith; Drossaert, Constance; Bohlmeijer, Ernst; Beelen, Anita (Informa Healthcare, 2025)
    Objective: This proof-of-concept study aimed to explore the acceptability and potential benefit of a self-guided online self-compassion intervention to aid resilient coping and reduce emotional distress among patients and ...
  • Semen analysis and reproductive hormones in boys with classical Hodgkin lymphoma treated according to the EuroNet-PHL-C2 protocol 
    Drechsel, K C E; Broer, S L; van Breda, H M K; Stoutjesdijk, F S; van Dulmen-den Broeder, E; Beishuizen, A; Wallace, W H; Körholz, D; Mauz-Körholz, C; Hasenclever, D; Cepelova, M; Uyttebroeck, A; Ronceray, L; Twisk, J W R; Kaspers, G J L; Veening, M A (Oxford University Press, 2024-11-01)
    STUDY QUESTION: What is the impact of the EuroNet-PHL-C2 treatment for boys with classical Hodgkin lymphoma (cHL) on semen parameters? SUMMARY ANSWER: More than half of the patients (52%, n ¼ 16/31) had oligozoospermia or ...
  • Advancements in Assays for Micro- and Nanoplastic Detection: Paving the Way for Biomonitoring and Exposomics Studies 
    Shao, Kuanliang; Zou, Runyu; Zhang, Zhuoyue; Mandemaker, Laurens D B; Timbie, Sarah; Smith, Ronald D; Durkin, Amanda M; Dusza, Hanna M; Meirer, Florian; Weckhuysen, Bert M; Alderete, Tanya L; Vermuelen, Roel; Walker, Douglas I (Annual Reviews Inc., 2025-01)
    Although plastic pollution and exposure to plastic-related compounds have received worldwide attention, health risks associated with micro- and nanoplastics (MNPs) are largely unknown. Emerging evidence suggests MNPs are ...
  • VIEWPOINT: The new EU Global Health Strategy and research: From policy to action 
    Plasència, A.; Vassall, A.; Agyepong, I.; Assohou-Luty, C.; Goerlitz, L.; Klipstein-Grobusch, K.; Rocamora, A.; Cobelens, F. (Wiley-Blackwell, 2024-10)
  • The 2024 British Society for Rheumatology guideline for management of systemic sclerosis 
    Denton, Christopher P; De Lorenzis, Enrico; Roblin, Elen; Goldman, Nina; Alcacer-Pitarch, Begonya; Blamont, Emma; Buch, Maya H; Carulli, Maresa; Cotton, Caroline; Del Galdo, Francesco; Derrett-Smith, Emma; Douglas, Karen; Farrington, Sue; Fligelstone, Kim; Gompels, Luke; Griffiths, Bridget; Herrick, Ariane; Hughes, Michael; Pain, Clare; Pantano, Georgina; Pauling, John D; Prabu, Athiveeraramapandian; O'Donoghue, Nuala; Renzoni, Elisabetta A; Royle, Jeremy; Samaranayaka, Muditha; Spierings, Julia; Tynan, Aoife; Warburton, Louise; Ong, Voon H (Oxford University Press, 2024-11-01)
    This guideline was developed according to the British Society for Rheumatology Guidelines Protocol by a Guideline Development Group comprising healthcare professionals with expertise in SSc and people with lived experience, ...
  • The 2024 British Society for Rheumatology guideline for management of systemic sclerosis-executive summary 
    Denton, Christopher P; De Lorenzis, Enrico; Roblin, Elen; Goldman, Nina; Alcacer-Pitarch, Begonya; Blamont, Emma; Buch, Maya H; Carulli, Maresa; Cotton, Caroline; Del Galdo, Francesco; Derrett-Smith, Emma; Douglas, Karen; Farrington, Sue; Fligelstone, Kim; Gompels, Luke; Griffiths, Bridget; Herrick, Ariane; Hughes, Michael; Pain, Clare; Pantano, Georgina; Pauling, John D; Prabu, Athiveeraramapandian; O'Donoghue, Nuala; Renzoni, Elisabetta A; Royle, Jeremy; Samaranayaka, Muditha; Spierings, Julia; Tynan, Aoife; Warburton, Louise; Ong, Voon H (Oxford University Press, 2024-11-01)
    This guideline was developed according to the British Society for Rheumatology Guidelines Protocol by a Guideline Development Group comprising healthcare professionals with expertise in SSc and people with lived experience, ...
  • The effects of lifestyle interventions on disease activity and quality of life in patients with systemic lupus erythematosus: A systematic review 
    Geertsema-Hoeve, B. C.; Sickinghe, A. A.; van Schaik-Mast, S. J.; Spierings, J.; van Laar, J. M.; Limper, M. (Elsevier, 2024-10)
    Introduction: Systemic Lupus Erythematosus (SLE) is an autoimmune disease affecting multiple organs, characterized by flares and remission. Treatment aims to reduce flare severity and prevent long-term damage, but remission ...
  • Mutational mechanisms in multiply relapsed pediatric acute lymphoblastic leukemia 
    van der Ham, Cédric G.; Suurenbroek, Lianne C.; Kleisman, Michelle M.; Antić, Željko; Lelieveld, Stefan H.; Yeong, Marley; Westera, Liset; Sonneveld, Edwin; Hoogerbrugge, Peter M.; van der Velden, Vincent H.J.; van Leeuwen, Frank N.; Kuiper, Roland P. (Springer Nature, 2024-11)
    Pediatric acute lymphoblastic leukemia (ALL) is marked by low mutational load at initial diagnosis, which increases at relapse. To determine which processes are active in (relapsed) ALL and how they behave during disease ...