Essential data variables for a minimum dataset for head and neck cancer trials and clinical research: HNCIG consensus recommendations and database
Baliga, Sujith; Abou-Foul, Ahmad K.; Parente, Pablo; Szturz, Petr; Thariat, Juliette; Shreenivas, Aditya; Nankivell, Paul; Bertolini, Federica; Biau, Julian; Blakaj, Dukagjin; Brennan, Sinead; Brunet, Aina; De Oliveira, Thiago Bueno; Burtness, Barbara; Maseda, Alberto Carral; Chow, Velda Ling Yu; Chua, Melvin LK; de Ridder, Mischa; Garikipati, Satya; Hanai, Nobuhiro; Ho, Francis Cho Hao; Huang, Shao Hui; Kiyota, Naomi; Klinghammer, Konrad; Kowalski, Luiz P.; Kwong, Dora L.; McDowell, Lachlan J.; Merlano, Marco Carlo; Nair, Sudhir; Economopoulou, Panagiota; Overgaard, Jens; Psyrri, Amanda; Tribius, Silke; Waldron, John; Yom, Sue S.; Mehanna, Hisham
(2024) European Journal of Cancer, volume 203
(Article)
Abstract
The Head and Neck Cancer International Group (HNCIG) has undertaken an international modified Delphi process to reach consensus on the essential data variables to be included in a minimum database for HNC research. Endorsed by 19 research organisations representing 34 countries, these recommendations provide the framework to facilitate and harmonise
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data collection and sharing for HNC research. These variables have also been incorporated into a ready to use downloadable HNCIG minimum database, available from the HNCIG website.
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Keywords: Cancer database, Collaborative research, Data harmonisation, Head and Neck cancer, Head and neck squamous cell carcinoma, Oncology, Cancer Research
ISSN: 0959-8049
Publisher: Elsevier Limited
Note: Publisher Copyright: © 2024 The Authors
(Peer reviewed)
