The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET
Talarico, Rosaria; Aguilera, Silvia; Alexander, Tobias; Amoura, Zahir; Antunes, Ana M; Arnaud, Laurent; Avcin, Tadej; Beretta, Lorenzo; Bombardieri, Stefano; Burmester, Gerd R; Cannizzo, Sara; Cavagna, Lorenzo; Chaigne, Benjamin; Cornet, Alain; Costedoat-Chalumeau, Nathalie; Doria, Andrea; Ferraris, Alessandro; Fischer-Betz, Rebecca; Fonseca, João E; Frank, Charissa; Gaglioti, Andrea; Galetti, Ilaria; Grunert, Jürgen; Guimarães, Vera; Hachulla, Eric; Houssiau, Frederic; Iaccarino, Luca; Krieg, Thomas; Limper, Marteen; Malfait, Fransiska; Mariette, Xavier; Marinello, Diana; Martin, Thierry; Matthews, Lisa; Matucci-Cerinic, Marco; Meyer, Alain; Montecucco, Carlomaurizio; Mouthon, Luc; Müller-Ladner, Ulf; Rednic, Simona; Romão, Vasco C; Schneider, Matthias; Smith, Vanessa; Sulli, Alberto; Tamirou, Farah; Taruscio, Domenica; Taulaigo, Anna V; Terol, Enrique; Tincani, Angela; van Laar, Jacob M; ERN ReCONNET investigators
(2021) Nature Reviews. Rheumatology, volume 17, issue 3, pp. 177 - 184
(Article)
Abstract
During the COVID-19 pandemic, the need to provide high-level care for a large number of patients with COVID-19 has affected resourcing for, and limited the routine care of, all other conditions. The impact of this health emergency is particularly relevant in the rare connective tissue diseases (rCTDs) communities, as discussed
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in this Perspective article by the multi-stakeholder European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET). The clinical, organizational and health economic challenges faced by health-care providers, institutions, patients and their families during the SARS-CoV-2 outbreak have demonstrated the importance of ensuring continuity of care in the management of rCTDs, including adequate diagnostics and monitoring protocols, and highlighted the need for a structured emergency strategy. The vulnerability of patients with rCTDs needs to be taken into account when planning future health policies, in preparation for not only the post-COVID era, but also any possible new health emergencies.
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Keywords: COVID-19/epidemiology, Comorbidity, Connective Tissue Diseases/epidemiology, Delivery of Health Care/organization & administration, Humans, Pandemics, SARS-CoV-2, Rheumatology, Review, Research Support, Non-U.S. Gov't, Journal Article
ISSN: 1759-4790
Publisher: Nature Publishing Group
Note: Funding Information: This publication was funded by the European Union’s Health Programme (2014–2020). Publisher Copyright: © 2021, Springer Nature Limited.
(Peer reviewed)