Defining key outcomes to evaluate performance of newborn screening programmes for cystic fibrosis

For the European CF Society Neonatal Screening Working Group (ECFS NSWG)

doi:https://doi.org/10.1016/j.jcf.2021.02.006

Defining key outcomes to evaluate performance of newborn screening programmes for cystic fibrosis

DSpace/Manakin Repository

Defining key outcomes to evaluate performance of newborn screening programmes for cystic fibrosis

For the European CF Society Neonatal Screening Working Group (ECFS NSWG)

(2021) Journal of Cystic Fibrosis, volume 20, issue 5, pp. 820 - 823

(Article)

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Keywords: CFSPID, Cystic fibrosis, Evaluation (3–6 words), Newborn screening, Outcome, Pediatrics, Perinatology, and Child Health, Pulmonary and Respiratory Medicine

DOI: https://doi.org/10.1016/j.jcf.2021.02.006

ISSN: 1569-1993

Publisher: Elsevier

Note: Funding Information: We would like to thank all the staff of the NBS laboratories and national evaluation centres who helped us to check all parameters and gave us feedback.

(Peer reviewed)