Thinking “ethical” when designing an international, cross-disciplinary biomedical research consortium

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Thinking “ethical” when designing an international, cross-disciplinary biomedical research consortium
 
Torres-Padilla, Maria Elena; Bredenoord, Annelien L.; Jongsma, Karin R.; Lunkes, Astrid; Marelli, Luca; Pinheiro, Ines; Testa, Giuseppe
(2020) EMBO Journal, volume 39, issue 19, pp. 1 - 5
(Article)
Abstract
This commentary outlines challenges with identifying and implementing ethical, legal and societal considerations when initiating large-scale scientific programs and suggests best practices to ensure responsible research.
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Keywords: General Biochemistry,Genetics and Molecular Biology, General Immunology and Microbiology, Molecular Biology, General Neuroscience, Journal Article
DOI: https://doi.org/10.15252/embj.2020105725
ISSN: 0261-4189
Publisher: Springer Science and Business Media Deutschland GmbH
Note: Funding Information: We thank the panellists who participated in the LifeTime Ethics Workshop on 10 July 2019 at the Helmholtz Centre in Munich, who guided and inspired the content of this commentary: Andrea Bandelli (CEO of Science Gallery International); Hervé Chneiweiss (INSERM and International Bioethics Committee of the UNESCO); Amedeo Santosuosso (Professor of Law, Science and New Technologies of the University of Pavia and Member of the World Commission on the Ethics of Scientific Knowledge and Technology of the UNESCO); Arnold Sauter (Office of Technology Assessment at the German Bundestag); Ibo van de Poel (Professor in Ethics and Technology at Delft University); Sarion Bowers (Head of Policy, Wellcome Sanger Institute); Costica Dumbrava (Communication Networks, Content & Technology, European Commission); Angelika Eggert (Department of Pediatrics, Oncology and Hematology, Charité, Berlin); Dory Reiling (Advisory to Law Governance and Technology, The Netherlands); and Single Cell Omics Germany for support. This project received funding from the European Union's Horizon 2020 research and innovation framework through the Coordination and Support Actions (CSA) programme under Grant Agreement No. 820431. The LifeTime initiative is co‐coordinated by Nikolaus Rajewsky (Berlin Institute for Medical Systems Biology, Max Delbrück Center for Molecular Medicine in the Helmholtz Association, Berlin, Germany; Charité‐Universitätsmedizin, 10117 Berlin, Germany; Berlin Institute of Health (BIH), Berlin, Germany) and Geneviève Almouzni (Institut Curie, CNRS, PSL Research University, Sorbonne Université, Nuclear Dynamics Unit, Equipe Labellisée Ligue Contre le Cancer, Paris, France). Funding Information: We thank the panellists who participated in the LifeTime Ethics Workshop on 10 July 2019 at the Helmholtz Centre in Munich, who guided and inspired the content of this commentary: Andrea Bandelli (CEO of Science Gallery International); Herv? Chneiweiss (INSERM and International Bioethics Committee of the UNESCO); Amedeo Santosuosso (Professor of Law, Science and New Technologies of the University of Pavia and Member of the World Commission on the Ethics of Scientific Knowledge and Technology of the UNESCO); Arnold Sauter (Office of Technology Assessment at the German Bundestag); Ibo van de Poel (Professor in Ethics and Technology at Delft University); Sarion Bowers (Head of Policy, Wellcome Sanger Institute); Costica Dumbrava (Communication Networks, Content & Technology, European Commission); Angelika Eggert (Department of Pediatrics, Oncology and Hematology, Charit?, Berlin); Dory Reiling (Advisory to Law Governance and Technology, The Netherlands); and Single Cell Omics Germany for support. This project received funding from the European Union's Horizon 2020 research and innovation framework through the Coordination and Support Actions (CSA) programme under Grant Agreement No. 820431. The LifeTime initiative is co-coordinated by Nikolaus Rajewsky (Berlin Institute for Medical Systems Biology, Max Delbr?ck Center for Molecular Medicine in the Helmholtz Association, Berlin, Germany; Charit?-Universit?tsmedizin, 10117 Berlin, Germany; Berlin Institute of Health (BIH), Berlin, Germany) and Genevi?ve Almouzni (Institut Curie, CNRS, PSL Research University, Sorbonne Universit?, Nuclear Dynamics Unit, Equipe Labellis?e Ligue Contre le Cancer, Paris, France).
(Peer reviewed)