Common Data Elements for Subarachnoid Hemorrhage and Unruptured Intracranial Aneurysms: Recommendations from the Working Group on Subject Characteristics

Unruptured Cerebral Aneurysms and SAH CDE Project Investigators

doi:https://doi.org/10.1007/s12028-019-00724-5

Common Data Elements for Subarachnoid Hemorrhage and Unruptured Intracranial Aneurysms: Recommendations from the Working Group on Subject Characteristics

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Common Data Elements for Subarachnoid Hemorrhage and Unruptured Intracranial Aneurysms: Recommendations from the Working Group on Subject Characteristics

Unruptured Cerebral Aneurysms and SAH CDE Project Investigators

(2019) Neurocritical Care, volume 30, issue Suppl 1, pp. 20 - 27

(Article)

Abstract

BACKGROUND: The National Institute of Neurological Disorders and Stroke (NINDS) Common Data Elements (CDEs) have been generated to standardize and define terms used by the scientific community. The widespread use of these CDEs promotes harmonized data collection in clinical research. The aim of the NINDS Unruptured Intracranial Aneurysms (UIA) and ... read more

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Keywords: Common Data Elements, Intracranial aneurysm, Participant/Subject characteristics, Subarachnoid Hemorrhage, Clinical Neurology, Critical Care and Intensive Care Medicine, Research Support, N.I.H., Intramural, Journal Article

DOI: https://doi.org/10.1007/s12028-019-00724-5

ISSN: 1541-6933

Publisher: Humana Press

Note: Funding Information: Dr. Bijlenga and Dr. Morel have received research grants from SystemsX.ch a Swiss initiative for Systems Biology and evaluated by the Swiss National Science Foundation. Dr Morita has nothing to disclose. Dr Brown has nothing to disclose. Dr Mocco reports grants and other from Stryker, grants and other from Penumbra, grants and other from Medtronic, grants and other from Microvention, personal fees and other from Imperative Care, personal fees and other from Cerebrotech, personal fees and other from Viseon, personal fees and other from Endostream, personal fees and other from Rebound Therapeutics, personal fees and other from Vastrax, personal fees and other from Blink TBI, personal fees and other from Serenity, personal fees and other from NTI, personal fees and other from Neurvana, personal fees, and other from Cardinal Consulting, outside the submitted work. Dr Wermer has nothing to disclose. Dr Ko reports grants from National Institutes of Health/NINDS, other from Edge Therapeutics, during the conduct of the study. Dr Murayama reports grants and personal fees from Stryker Neurovascular, grants from Siemens Healthcare, and personal fees from Kaneka Medics, during the conduct of the study. Funding Information: The views expressed here are those of the authors and do not represent those of the National Institutes of Health (NIH), the National Institute of Neurological Disorders and Stroke (NINDS) or the US Government. Funding Information: Logistical support for this project was provided in part through NIH Contract HHSN271201200034C, the Intramural Research Program of the NIH, NLM, The Neurocritical Care Society and the CHI Baylor St Luke’s Medical Center in Houston, TX. The development of the NINDS SAH CDEs was made possible thanks to the great investment of time and effort of WG members and the members of the NINDS CDE Project and NLM CDE project teams participating from 2015 to 2017. Publisher Copyright: © 2019, Neurocritical Care Society.

(Non peer reviewed)