230th ENMC International Workshop:: Improving future assessment and research in IgM anti-MAG peripheral neuropathy: A consensus collaborative effort, Naarden, The Netherlands, 24-26 February 2017
Pruppers, Mariëlle H.J.; Merkies, Ingemar; Lunn, Michael P.T.; Notermans, Nicolette C.; van den Bergh, Peter; Blomkwist-Markens, Patricia; Cornblath, David; D'Sa, Shirley; Faber, Catharina; Goedee, Stephan; Gorson, Ken; Léger, Jean Marc; Lewis, Richard; Lunn, Michael; Mazawey, Lou; Merkies, Ingemar; Nobile-Orazio, Eduardo; Notermans, Nicolette C.; Padua, Luca; van der Pol, Ludo; Pruppers, Mariëlle H.J.; Querol, Louis; Steck, Andreas; Willison, Hugh; on behalf of the; IMAGiNe Study Group
(2017) Neuromuscular Disorders, volume 27, issue 11, pp. 1065 - 1072
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Keywords: Autoantibodies, Congresses as Topic, Consensus, Humans, Immunoglobulin M/metabolism, Myelin Basic Protein/immunology, Netherlands, Peripheral Nervous System Diseases/diagnosis, Pediatrics, Perinatology, and Child Health, Neurology, Clinical Neurology, Genetics(clinical), Journal Article, Research Support, Non-U.S. Gov't
ISSN: 0960-8966
Publisher: Elsevier Limited
Note: Funding Information: The 230th European Neuromuscular Center (ENMC) international workshop occurred in Naarden, the Netherlands, from February 24th to 26th, 2017. The aims of the workshop were: 1) to create an IgM associated peripheral neuropathy study group and achieve consensus regarding the registration of patients with IgM associated peripheral neuropathy in a patient-based registry, 2) to improve future assessment of patients with IgM associated peripheral neuropathy from hematological markers to clinical trials, and 3) to discuss promising therapies for future clinical trials. Seventeen clinicians and researchers (sixteen neurologists and one hematologist) from nine countries (Belgium, Curaçao, France, Italy, the Netherlands, Spain, Switzerland, the United Kingdom, and the United States of America) were present. A patient with IgM associated peripheral neuropathy, a representative of the GBS/CIDP Foundation International, and a PhD student, who received support from the ENMC Young Scientist Program, also attended. Funding Information: The pharmaceutical company GRIFOLS also contributed financially to this workshop with an unrestricted grant to the ENMC.
(Peer reviewed)