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Rhabdomyolysis, encephalopathy, epilepsy and cardiac arrhythmia

Toeback, Jonas; De Pagter, Mirjam; Exalto, Lieza; Koop, K; Van Der Heijden, Joris (BMJ Publishing Group, 2023-08-01)
Psychosocial factors associated with pain outcomes in patients with painful temporomandibular disorders and headaches

van der Meer, Hedwig A.; Tol, Cornel H.M.; Speksnijder, Caroline M.; van Selms, Maurits K.A.; Lobbezoo, Frank; Visscher, Corine M. (Blackwell Munksgaard, 2023-04)

The objective of this study was to assess the association between psychosocial factors (in terms of anxiety, somatization, depression, and optimism) and pain (in terms of headache pain intensity and pain-related disability), ...
Automatic grading of patients with a unilateral facial paralysis based on the Sunnybrook Facial Grading System - A deep learning study based on a convolutional neural network

ten Harkel, Timen C.; de Jong, Guido; Marres, Henri A.M.; Ingels, Koen J.A.O.; Speksnijder, Caroline M.; Maal, Thomas J.J. (Elsevier, 2023-05-01)

Purpose: In order to assess the severity and the progression of a unilateral peripheral facial palsy the Sunnybrook Facial Grading System (SFGS) is a well-established grading system due to its clinical relevance, sensitivity, ...
Patients’ and Healthcare Professionals’ Perspectives on Better Use of Patient-Reported Outcome Measures in Head and Neck Cancer

DHNA study group (Elsevier Limited, 2023-08)

Objectives: Patients with head and neck cancer (HNC) are often highly affected by disease and treatment, resulting in impaired physical functioning and quality of life. Therefore, evaluation of patients’ psychosocial and ...
The extent of unnecessary tooth loss due to extractions prior to radiotherapy based on radiation field and dose in patients with head and neck cancer

Buurman, Doke J.M.; Speksnijder, Caroline M.; Granzier, Marlies E.; Timmer, Veronique C.M.L.; Hoebers, Frank J.P.; Kessler, Peter (Elsevier Ireland Ltd, 2023-10)

Background and purpose: Prior to radiotherapy (RT), teeth with poor prognosis that pose a risk for post-RT osteoradionecrosis (ORN) are removed. To allow enough time for adequate wound healing prior to RT, decisions are ...
Two or four implants for maxillary overdentures in edentulous patients: 1-year results of a randomized controlled trial

Onclin, Pieter; Speksnijder, Caroline M.; Vissink, Arjan; Meijer, Henny J.A.; Raghoebar, Gerry M. (Wiley-Blackwell, 2023-12)

Introduction: Maxillary implant overdenture therapy is a good treatment option for treating patients experiencing problems with their conventional maxillary denture. Retaining the overdenture with four implants and a bar ...
Impact of antenatal care on severe maternal and neonatal outcomes in pregnancies complicated by preeclampsia and eclampsia in Ghana

Beyuo, Titus K; Lawrence, Emma R; Oppong, Samuel A; Kobernik, Emily K; Amoakoh-Coleman, Mary; Grobbee, Diederick E; Browne, Joyce L; Bloemenkamp, K W M (Elsevier, 2023-09)

Objectives: To explore how specific measures of antenatal care utilization are associated with outcomes in pregnancies complicated by preeclampsia and eclampsia in Ghana. Study Design: Participants were adult pregnant women ...
The efficacy and safety of allogeneic stem cell transplantation in Mevalonate Kinase Deficiency

on behalf of the EBMT Inborn Errors Working Party (BioMed Central Ltd., 2022-07-29)

Objectives: Mevalonate kinase deficiency (MKD) is a rare autoinflammatory syndrome. Several reports have described allogeneic hematopoietic stem cell transplantation in severely affected patients, sometimes with promising ...
The 2021 EULAR/American College of Rheumatology points to consider for diagnosis, management and monitoring of the interleukin-1 mediated autoinflammatory diseases: cryopyrin-associated periodic syndromes, tumour necrosis factor receptor-associated periodic syndrome, mevalonate kinase deficiency, and deficiency of the interleukin-1 receptor antagonist

Romano, Micol; Arici, Z. Serap; Piskin, David; Alehashemi, Sara; Aletaha, Daniel; Barron, Karyl S.; Benseler, Susanne; Berard, Roberta; Broderick, Lori; Dedeoglu, Fatma; Diebold, Michelle; Durrant, Karen L.; Ferguson, Polly; Foell, Dirk; Hausmann, Jonathan; Jones, Olcay Y.; Kastner, Daniel L.; Lachmann, Helen J.; Laxer, Ronald M.; Rivera, Dorelia; Ruperto, Nicolino; Simon, Anna; Twilt, Marinka; Frenkel, Joost; Hoffman, Hal; De Jesus, Adriana A.; Kuemmerle-Deschner, Jasmin Beate; Ozen, Seza; Gattorno, Marco; Goldbach-Mansky, Raphaela; Demirkaya, Erkan (Elsevier, 2022-07-01)

Background The interleukin-1 (IL-1) mediated systemic autoinflammatory diseases, including the cryopyrin-associated periodic syndromes (CAPS), tumour necrosis factor receptor-associated periodic syndrome (TRAPS), mevalonate ...
Twelve tips for patient involvement in health professions education

Eijkelboom, Charlotte; Brouwers, Marianne; Frenkel, Joost; van Gurp, Petra; Jaarsma, Debbie; de Jonge, Roos; Koksma, Jur; Mulder, Dante; Schaafsma, Evelyn; Sehlbach, Carolin; Warmenhoven, Franca; Willemen, Agnes; de la Croix, Anne (Elsevier Ireland Ltd, 2023-01)

Moving towards person-centered care, with equal partnership between healthcare professionals and patients, requires a solid role for the patient in the education of students and professionals. Patients can be involved as ...
Clinically Established Temporomandibular Involvement in Adults With Juvenile Idiopathic Arthritis

de Sonnaville, Willemijn F C; Speksnijder, Caroline M; Zuithoff, Nicolaas P A; Heijstek, Marloes W; Wulffraat, Nico M; Steenks, Michel H; Rosenberg, Antoine J W P (Journal of Rheumatology, 2023-11)

Objective. To study clinical variables defining temporomandibular function in adults with juvenile idiopathic arthritis (JIA) and healthy controls. Methods. In this cross-sectional study, the temporomandibular joint (TMJ) ...
Haematopoietic stem cell transplantation for severe autoimmune diseases in children: A review of current literature, registry activity and future directions on behalf of the autoimmune diseases and paediatric diseases working parties of the European Society for Blood and Marrow Transplantation

The EBMT Autoimmune Diseases (ADWP) and Paediatric Diseases (PDWP) Working Parties (Wiley-Blackwell, 2022-07)

Although modern clinical management strategies have improved the outcome of paediatric patients with severe autoimmune and inflammatory diseases over recent decades, a proportion will experience ongoing or recurrent/relapsing ...
Outcomes of SARS-CoV-2 infection among children and young people with pre-existing rheumatic and musculoskeletal diseases

Kearsley-Fleet, Lianne; Chang, Min Lee; Lawson-Tovey, Saskia; Costello, Ruth; Fingerhutová, Šárka; Švestková, Natálie; Belot, Alexandre; Aeschlimann, Florence A.; Melki, Isabelle; Koné-Paut, Isabelle; Eulert, Sascha; Kallinich, Tilmann; Berkun, Yackov; Uziel, Yosef; Raffeiner, Bernd; Oliveira Ramos, Filipa; Clemente, Daniel; Dackhammar, Christina; Wulffraat, Nico M.; Waite, Helen; Strangfeld, Anja; Mateus, Elsa F.; Machado, Pedro M.; Natter, Marc; Hyrich, Kimme L. (Elsevier, 2022-07-01)

Objectives Some adults with rheumatic and musculoskeletal diseases (RMDs) are at increased risk of COVID-19-related death. Excluding post-COVID-19 multisystem inflammatory syndrome of children, children and young people ...
Current Transition Practice for Primary Immunodeficiencies and Autoinflammatory Diseases in Europe: a RITA-ERN Survey

RITA-ERN Transition Working Group Consortium (Springer New York, 2023-01)

Background: Due to the absence of curative treatments for inborn errors of immunity (IEI), children born with IEI require long-term follow-up for disease manifestations and related complications that occur over the lifespan. ...
Vaccinology in pediatric rheumatology: Past, present and future

for the PReS Vaccination Working Party (Frontiers Media S. A., 2023-01-10)

With the introduction of biological disease-modifying antirheumatic drugs (bDMARDs), the treatment of pediatric patients with autoimmune/inflammatory rheumatic diseases (pedAIIRD) has advanced from the “Stone Age” to modern ...
Editorial: Vaccination in children with immune-mediated diseases

Toplak, Natasa; Wulffraat, Nicolaas M.; Uziel, Yosef (Frontiers Media S. A., 2023)
Cross-Cultural Adaptation and Validation of the Methotrexate Intolerance Severity Score Questionnaire in Portuguese (Brazil) for Children and Adolescents with Juvenile Idiopathic Arthritis

Londe, Ana Carolina; de Amorim, Jaqueline Cristina; Julio, Paulo Rogério; Wulffraat, Nico M.; Marini, Roberto; Appenzeller, Simone (Multidisciplinary Digital Publishing Institute (MDPI), 2023-02)

The Methotrexate (MTX) Intolerance Severity Score (MISS) questionnaire has been developed to identify MTX adverse events in juvenile idiopathic arthritis (JIA). The objective of this study was to translate and validate ...
COVID-19-related anxiety trajectories in children, young people and adults with rheumatic diseases

Shoop-Worrall, Stephanie J.W.; Verstappen, Suzanne M.M.; Costello, Wendy; Angevare, Saskya P.; Uziel, Yosef; Wouters, Carine; Wulffraat, Nico; Beesley, Richard (Oxford University Press, 2023)

Objectives: Uncertainty regarding the risk of coronavirus disease 2019 (COVID-19), its complications and the safety of immunosuppressive therapies may drive anxiety among adults and parents of children and young people ...
Hybrid Controlled Clinical Trials Using Concurrent Registries in Amyotrophic Lateral Sclerosis: A Feasibility Study

van Eijk, Ruben P A; van den Berg, Leonard H; Roes, Kit C B; Tian, Lu; Lai, Tze L; Nelson, Lorene M; Li, Chenyu; Scowcroft, Anna; Garcia-Segovia, Jesus; Lu, Ying (Wiley-Blackwell, 2023-10)

Hybrid designs with both randomized arms and an external control cohort preserve key features of randomization and utilize external information to augment clinical trials. In this study, we propose to leverage high-quality, ...
Portable fixed dynamometry enables home-based, reliable assessment of muscle strength in patients with amyotrophic lateral sclerosis: a pilot study

Van Unnik, Jordi W J; Bakers, Jaap N E; Kokx, Steure; Van Den Berg, Leonard H; Visser-Meily, Johanna M A; Beelen, Anita; Van Eijk, Ruben P A (Informa Healthcare, 2023)

OBJECTIVE: To determine the feasibility, reliability, and sensitivity of remotely monitoring muscle strength loss of knee extensors using a novel portable fixed dynamometer (PFD) in patients with amyotrophic lateral sclerosis ...

Now showing items 9181-9200 of 40729