Positive aspects of living with dementia: an exploratory qualitative multiple-case study

Abstract

SUMMARY Background: Dementia is a feared disease among the older population due to both research and media who prevail a negative image of the disease causing stigma. There is a need to extend research to include more positive aspects in order to reduce this stigma and to contribute to a dementia-friendly society. Aim: To explore any positive aspects of living with dementia from the perspectives of persons diagnosed with dementia, their informal caregiver and professional. Methods: An exploratory multiple-case multisite design involving four cases. Each case consisted of a person diagnosed with dementia, his or her informal caregiver and professional. Data collection consisted of semi-structured interviews and cultural probes method. During cultural probe, the informal caregiver was asked to make photos of positive moments. A within-case analysis was performed followed by a cross-case analysis. The study was conducted between February and May 2016. Results: Three themes related to positive aspects were identified: (1) It’s the little things that matter, (2) being surrounded by beloved ones and (3) life is what you make of it. Conclusion and implications of key findings: Dementia is not only experienced by a range of strains. Findings from this study contribute to the achievement of a more positive attitude towards dementia. By using the insights from this study in educational activities and columns for newspapers or on the web, the negative image may be reduced and further development of a dementia-friendly society can be supported.